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Current Projects

Coalition Activities and Priorities Highlighted


China Summit on Newborn Screening and Early Detection of Heart Disease

In collaboration with the National Office for Maternal and Child Health Surveillance – People’s Republic of China, the Chinese Preventive Medicine Association (CPMA), and the World Health Organization’s Patient Safety Checklist initiative (WHO) and the Newborn Foundation, will host the inaugural “China Summit on Newborn Screening and Early Detection of Congenital Heart Disease” on April 18-19, 2013 in Beijing.The purpose of this meeting is to provide a public health framework for successful population health screening, including for the most prevalent birth defect, congenital heart disease.  The meeting will include multi-national discussions and presentations of best practices from a select international delegation of public health, policy, health IT, health providers and clinical experts.  The summit is part of a phased pilot project to begin implementing screening, infrastructure and capacity building for the detection and treatment of congenital heart disease.

Newborn Screening for Heart Defects Healthcare Provider Education Video

Created in conjunction with the University of Minnesota Amplatz Children’s Hospital and the Minnesota Department of Health, this open source video offers background on Congenital Heart Disease and heart defects in newborns and provides a visual guide for how and when to conduct screenings with the appropriate technologies in the newborn nursery.  The video is available for free download here or can be viewed on Vimeo

A Digital Mapping Project for Newborn with Health Problems

A landmark project to map and build a digital application that will help connect hospitals and birthing centers with speciality care and critical access / referral destinations for neonatal patients.

The Newborn HealthConnect project is showing how meaningful research and forward-thinking, usable technologies can be used as clinical decision support for healthcare providers in newborn settings. Currently there is no standard, easy access, electronic system to aid clinicians in the decision-making process regarding the appropriate referral and transfer of newborns.  The initial pilot will focus on neonatal patients with potential or confirmed congenital heart defects. This project will not only provide that mechansim but will serve as the evidence-based standard requested by the Secretary of Health and Human Services’ recommendation for newborn screening for heart defects, the most prevalent and deadly of all birth defects.